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Advocacy

University of Oregon sign

In 2018, Oregon was one of 10 states awarded a TBI State Partnership Mentor Grant —a cooperative agreement under the Administration for Community Living’s (ACL) Traumatic Brain Injury (TBI) State Partnership Program. This program is funded under the Traumatic Brain Injury Act of 2014 (P.L. 113-196). 

CBIRT will serve as the lead state agency for this three-year grant.  The goal of the grant program is to create and strengthen a system of services and supports that maximizes the independence, well-being, and health of people with traumatic brain injuries across the lifespan, their family members, and their support networks. 

The Mentor State Grants were awarded to more established states to maintain and expand their TBI infrastructure, while also mentoring Partner State Grantees, and working together with ACL to create a national, culturally competent, person-centered professional development training infrastructure for TBI service professionals. Oregon was designated as a Mentor State in two areas: Underserved Populations and Return to Learn/Return to Play.  

As part of this project David Kracke, JD, will serve as Oregon’s Brain Injury Advocate-Coordinator. This new position is the first step toward establishing a permanent Brain Injury Advocate-Coordinator Director for our state. This level of leadership is essential for Oregon to create a coordinated, person-centered system of care for all Oregonians with TBI across the lifespan.

TBI Advisory Board Members

  • James Chesnutt, MD – Sports Medicine, Oregon Health Sciences University; Co-Director OHSU TBI Initiative; OSAA Sports Medicine Advisory Committee
  • Jake Cornett – Executive Director of Disability Rights Oregon
  • Cheryl Green – Filmmaker; Person with TBI
  • Kent Gross – Independent Living Specialist; Lane Independent Living Alliance/Center for Independent Living, Person with TBI
  • Richard Harris – Public member; Former Director of Oregon’s Dept. of Addictions and Mental Health & Executive Director of Central City Concern
  • David Kracke, JD – Oregon's Brain Injury Advocate Coordinator
  • Jennifer Meade – Aging & Disability Resource Center
  • Laura Linda Negri Pool – Early Intervention Teaching Training, Person with TBI
  • Carolyn Saraceno – Research Assistant, Center on Brain Injury Research and Training, University of Oregon, Person with brain injury
  • Fred Steele – Long-Term Care Ombudsman
  • Sherry Stock, ED, MS, CBIST – Executive Director, Brain Injury Alliance of Oregon, Family member of person with TBI
  • Sheila Thomas – Executive Director, Lane Independent Living Alliance, Center for Independent Living; Vice President, Association of Oregon Centers for Independent Living
  • Fern Wilgus – Veteran; Advocate, Person with brain injury

Oregon Resources 

Governor's Task Force 

The purpose of the Governor’s Task Force (GTF) on Traumatic Brain Injury (TBI)
(Executive Order No. 13-02, 2013) was to (1) identify the gaps in Oregon’s public
and private sector system of services for individuals with brain injury; and (2) make
policy recommendations to address those gaps. 

Governor's Task Force on Traumatic Brain Injury - Report on Findings and Recommendations  
Updated May 2018

Governor's Task Force on Traumatic Brain Injury - Executive Summary 
Updated May 2018

Brain Injury 

Brain Injury Alliance of Oregon  
The mission of the Brain Injury Alliance of Oregon is to create a better future through brain injury prevention, advocacy, education, research, and support. 

Brain Injury Connections Northwest 
BIC-NW serves the brain injury community in the Portland metropolitan area in the Pacific Northwest.

General 

Aging and Disability Resource Connection of Oregon: ADRC 
Get connected to local information and services for seniors and people with disabilities.

Association of Oregon Centers for Independent Living (AOCIL) 
The Association of Oregon Centers for Independent Living’s (AOCIL) mission is to lead the consumer driven Independent Living Movement by supporting Centers of Independent Living, engaging in systems advocacy, community education, and the development of collaborative partnerships.

Oregon Department of Human Services (DHS)
The Department of Human Services (DHS) is Oregon’s principal agency for helping Oregonians achieve wellbeing and independence through opportunities that protect, empower, respect choice and preserve dignity, especially for those who are least able to help themselves.

Family and School Resources 

Family Advocacy Skills Training: A Handbook for Family Advocates

Transition Toolkit for Students with Traumatic Brain Injury

General Resources 

BrainLine | All About Brain Injury and PTSD
Information and resources about treating and living with traumatic brain injury (TBI) and PTSD: research-based articles, videos, personal stories, expert Q&A, research updates and more for people living with brain injury, caregivers, family, friends, and professionals.

CDC | Traumatic Brain Injury & Concussion
Get the facts, signs and symptoms, response, recovery, prevention and more. 

Defense and Veterans Brain Injury Center (DVBIC)
The Defense and Veterans Brain Injury Center (DVBIC) is a part of the U.S. Military Health System. Specifically, DVBIC is the traumatic brain injury (TBI) center of excellence for the Defense Health Agency.

National Resource Center for Traumatic Brain Injury (NRCTBI) 
The mission of the National Resource Center for Traumatic Brain Injury (NRCTBI) is to provide relevant, practical information for professionals, persons with brain injury, and family members. 

Traumatic Brain Injury Model Systems | Sponsored by the Nation Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) 
The 16 Traumatic Brain Injury (TBI) Model Systems develop resources for people living with traumatic brain injuries and their supporters. These evidence-based materials are available in a variety of platforms such as printable PDF documents, videos, and slideshows.

Current Products

Coming soon. 

Past Products

Fact of the Matter Research Briefs